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Gastrointestinal Surgery for Crohn’s (IBD) and B12 Warnings

 

Post-Op Risks Doctors Forget to Mention

GASTROINTESTINAL SURGERY FOR CROHN’S (IBD) AND B12 WARNINGS, WWW.B12PATCH.COM

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Nearly 75% of all Crohn’s disease (IBD)patients undergo gastrointestinal surgery, but few receive warnings about post- surgery vitamin B12 deficiency symptoms.

Vitamin B12 Deficiency Stories, Post-Gastro Surgery

Crohn’s disease is an autoimmune disorder, Inflammatory Bowel Disease (IBD) that causes severe damage of the gastrointestinal tract.  In most cases, IBD patients decide to undergo gastrointestinal surgery to treat the many debilitating symptoms of Crohn’s disease.  However, in addition to relapses, which often occur within 10 years, many patients begin to suffer the effects of vitamin B12 deficiency.

GASTROINTESTINAL SURGERY FOR CROHN’S (IBD) AND B12 WARNINGS, WWW.B12PATCH.COM

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Three Years Later, Things my Doctor Forgot to Mention

Belinda suffers from Crohn’s disease. In her Crohn’s and Life happens blog, she relates a frustrating, unfortunate scenario that happens to the majority of Crohn’s disease patients who undergo gastrointestinal surgery- the discovery, several years post-op, that she suffers from severe vitamin B12 deficiency, and that not a single doctor had warned her about the risk factors.

GASTROINTESTINAL SURGERY FOR CROHN’S (IBD) AND B12 WARNINGS, WWW.B12PATCH.COM

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Close Call with Vitamin B12 Deficiency

In his blog, My Crohn’s Disease, William Malmborg tells of suffering from vitamin B12 deficiency after having small-bowel resection surgery in order to treat fibro stenotic Crohn’s disease.

“Little did I know I was pretty close to death at this point, my body having been suffering a B-12 deficiency for many months, thanks to my not having realized I was supposed to be taking B-12 following my surgery a year earlier.”

B12 deficiency, left untreated, can result in pernicious anemia, severe neurological damage, and cardiovascular disease.  Side effects of B12 deficiency often include fatigue, depression, short-term memory loss, tingling in hands and feet, and reduced motor skills, to name just a few.

Read more about vitamin B12 deficiency: B12 Deficiency: Don’t Ignore the Symptoms

GASTROINTESTINAL SURGERY FOR CROHN’S (IBD) AND B12 WARNINGS, WWW.B12PATCH.COM

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Bruising Myself with Vitamin B12 Shots…

Vitamin B12 shots are painful, as they require insertion into the thickest, most muscular part of the thigh.  Many IBD patients opt to administer the injection themselves on a weekly basis, resulting in a large bruise, as depicted in the Jenni’s Guts blog.  Sometimes, bleeding occurs, as well.

…and Paying for it dearly

Unless you have very good health insurance coverage, vitamin B12 injections can be pricy.  Witness Gutsy Girl-

“ …like many of my surgical Crohn’s brethren, I have to bear a monthly B12 shot for the rest of my life.  The negotiated rate with my insurance carrier… is $156. One hundred and fifty-six dollars for a shot of …a vitamin.  Per month.”

GASTROINTESTINAL SURGERY FOR CROHN’S (IBD) AND B12 WARNINGS, WWW.B12PATCH.COM

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Self-Discovery of B12 Deficiency

Two years after having his terminal ilium and colon removed, Blake Weinberger continues to suffer from debilitating Crohn’s disease symptoms.  Upon conducting his own research online, he learns about the high correlation between vitamin B12 deficiency and gastrointestinal surgery.  As to why his surgeon and other doctors failed to warn him about the risks involved, he can only speculate.

“In retrospect, I should have started B12 injections two years ago, right after the removal of my colon and terminal ileum.  But my family doctor never mentioned it to me. nor did my GI, or my surgeon. It was only because of my own research that I began to question my B12 levels.” –Colitis blog.

Related reading:

101 Helpful Sites for Kids ‘n Teens with Crohn’s (and their Parents)

Crohn’s Disease: What You Can Do about it Now

On the Run with Crohn’s? 6 Ways to Ease Public Restroom Anxiety

Natural Treatments for the Symptoms of Crohn’s Disease

Gut Bugs:Winning the Bacteria Battle

References:

CCFA.org: Surgery for Crohn’s Disease

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4 Responses to “Gastrointestinal Surgery for Crohn’s (IBD) and B12 Warnings”

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    [...] the truth.  In fact, smoking worsens the symptoms of Crohn’s disease.  Smokers who elect for gastrointestinal surgery to treat Crohn’s disease have a harder time staying in remission than non-smokers with [...]

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    [...] Gastrointestinal Surgery for Crohn’s (IBD) and B12 Warnings [...]

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