101 Helpful Sites for Kids ‘n Teens with Crohn’s (and their Parents)

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Looking for advice on parenting children with Crohn’s disease? Here are some great blogs, forums and recipe sites for IBD sufferers.


Crohn’s Disease is an inflammatory bowel disease (IBD) that causes inflammation in your digestive system.  Symptoms of Crohn’s disease are painful, embarrassing and sometimes life-threatening:

  • Severe stomach cramps
  • Chronic watery diarrhea
  • Bloody stools
  • Ulcer
  • Loss of appetite
  • Fever
  • Arthritis
  • Fatigue
  • Delayed growth
  • Vitamin B12 deficiency

Crohn’s Disease: What You Can Do about it Now

One of the best ways to treat IBD is to follow a diet plan that alleviates most of the symptoms. There are many food ingredients that are associated with increased Crohn’s disease symptoms: dairy, gluten, sugar, and grains, for example.

The gluten-free diet excludes all food items that contain gluten, a protein found in grains such as wheat, barley, rye, oats and others.

The casein-free diet eliminates the specific protein that occurs naturally in milk, while the dairy-free diet rules out all dairy products as a whole.

The  Specific Carbohydrate Diet eliminates certain carbohydrates and encourages eating more meat, nuts, eggs, and vegetables. The Gut and Psychology Syndrome (GAPS) diet involves reducing complex carbohydrates, processed foods, gluten, and sugar.

6 Great Diets for Autistic Children

Below is a list of 101 helpful sites and blogs for adults, teens and children with Crohn’s disease and colitis.

Casein-Free CF

Dairy-Free  DF

Gluten-Free  GF

Gut and Psychology Syndrome GAP

Specific Carbohydrate Diet SCD

Sugar-Free  SF

  1. Adventures of a Gluten Free Mom GF
  2. Avoiding Milk Protein CF
  3. Beths Blog SCD
  4. Breaking the Vicious Cycle SCD
  5. The Bright Side of Crohn’s
  6. Building a Crohn’s Community
  7. CCFA of America
  8. CDSN – The Crohn’s Disease Support Network
  9. Children’s Digestive Health and Nutrition Foundation (CDHNF)
  10. A Chronic Dose
  12. The Colitis Experience
  13. ComfyTummy SCD
  14. Cooking for Celiacs, Colitis, Crohn’s and IBS
  15. Crohn’s and Colitis UK
  16. Crohn’s Boy
  17. Crohn’s/Colitis Foundation of Canada
  18. Crohns Disease and my Experience
  19. Crohn’s Disease Center (WebMD)
  20. Crohns Disease Forum
  21. Crohn’s disease: Lifestyle and home remedies (MayoClinic)
  22. Crohn’s Disease/Ulcerative Colitis Mommies Baby Center
  23. Crohn’s/IBD News
  24. Crohn’s Lives With Me
  25. Crohn’s Mommy
  26. Crohn’s On Campus — A Survival Guide For The College Student With Crohn’s Disease
  27. Dairy Free Betty DF
  28. Dairy Free “Tried and True” DF
  29. The Dietary Adventures of Jilluck SCD
  30. The Digestion Blog
  31. Eat Wheat-Free, Dairy-Free, & Low Sugar DFGF
  32. Elana’s Pantry GF
  33. Engaged: A Blog on the Bog
  34. Farty Girl
  35. A Foodie’s Fall from Grace SCD
  36. GAPS Diet GAP
  37. GAPS Guide GAP
  38. Get Your Guts In Gear
  39. The Gimpy Colon
  40. Gluten-free girl GF
  41. Gluten Free Global Community GF
  42. Gluten-Free Goddess GF
  43. The Gluten-Free Homemaker GF
  44. Grain-Free Foodies GAP
  45. The Gutsy Girl
  46. Heal-Balance-Live SCD
  47. Healingwell.com’s Crohn’s Page
  48. How we can’t eat anything
  49. IBD and Me Activity Book (PDF)
  50. IBD in Our Home
  51. IBD U – A site for older teens with IBD transitioning into college, work and adult healthcare
  52. I Hate IBD
  53. I Have UC – Ulcerative Colitis Community
  54. In Sickness and In Health
  55. Intense Intestines Blog
  56. The Intestinal Disease Education and Awareness Society (IDEAS)
  57. Irritable Bowel Blog
  58. Jpouch Life: Stories of Colitis, Crohn’s, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world
  59. Jenni’s Guts
  60. Journey Through Crohn’s
  61. Kat’s Food Blog SCD
  62. Kickin’ It with Crohn’s Disease
  63. Kid Appeal
  64. Know Your Gut
  65. Let’s Talk Crohn’s and other GI Issues (Facebook)
  67. A Life of Sugar and Spice GF
  68. A Life Without Ice Cream DF
  69. Living with Chronic Illness
  70. Living with Crohn’s Disease
  71. Miss Dropsie DFGF
  72. Mrs Ed’s Research and Recipes SCD
  73. My Crohn’s and Colitis Blog
  74. My Crohn’s Disease
  75. MyIBD.org
  76. No more Crohn’s for me! SCD
  77. Organically Autoimmune
  78. PARA: Scientific Facts About Mycobacterium Paratuberculosis and Crohn’s Disease
  79. Partnership to Fight Chronic Disease
  80. Pecanbread web site SCD
  81. The Perfect Health Diet
  82. Pete Learns All About Crohns & Colitis Comic Book (PDF)
  83. Ramble On SCD
  84. Recipes for the Specific Carbohydrate Diet SCD
  85. The SCD Girl SCD
  86. SCD Lifestyle SCD
  87. A Second life-Living with Crohn’s Disease
  88. Semi Colon
  89. Shaky Crohny Guy
  90. She Let Them Eat Cake GF
  91. So they say I have Crohn’s
  92. The Spunky Coconut CFGFSF
  93. Straight Into Bed Cakefree and Dried
  94. Stronger than Crohn’s
  95. Teens With Crohn’s Disease Website
  96. UC and Crohn’s: A Site for Teens
  97. The UK Lactose Intolerance Page DF
  98. U.S. Food Safety Blog
  99. Undercoverostomy
  100. WANTED: Crohn’s End
  101. Z’s Cup Of Tea GFSCD

Also read:

On the Run with Crohn’s? 6 Ways to Ease Public Restroom Anxiety

Natural Treatments for the Symptoms of Crohn’s Disease

Gut Bugs:Winning the Bacteria Battle